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Life and Death | Lifestyle Issues | The Church

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Whose Life Do We Value?

30 October 2009

Down’s Syndrome Association

It probably wasn't a surprise to hear this week that the number of Down's syndrome pregnancies has nearly doubled in the last 20 years, given that many women are increasingly delaying Motherhood. What might have been a surprise, though, is that the number of babies born with Down's syndrome has stayed constant: the number of screenings has increased and consequently more women are choosing to terminate rather than have a disabled child. Three babies are now aborted every day because of Down's syndrome, with 90% of women diagnosed with a Down's pregnancy opting to terminate.

No doubt many of these women face a painful and very difficult decision - with fears about how they will manage, the affect on their families and often concern for the quality of life of that child. As such, Down's organisations have been calling for greater support and counselling for women facing this situation. Furthermore, Frank Buckley, chief executive of Down Syndrome Education International said this, "People with Down syndrome are living longer and achieving more than ever before and it is reassuring to know that they will be continuing to make valued contributions to our communities for years to come." Of course, I'm encouraged that people are speaking up for the worth of those with Down's syndrome. But if we believe that all people are made in the image of God - regardless of race, gender or disability - then surely their worth and value is defined by that - not just in the contribution that they will make to their communities and in their achievements.

Sadly, our society seems to have adopted this kind of approach that bases the worth and value of people on the contribution they can make and how useful we think they'll be. If followed through this can have serious consequences for our attitude towards disabilities: it could imply that unless people with disabilities can be 'useful' or contribute to society, their life may be better not lived. But for one thing how do we define 'contribution'? Many families with children with Down's syndrome testify to the love and joy that they bring into their lives. And can we really presume to judge another person's quality of life? Many people suffer from conditions (including the millions with depression) which can impinge on their quality of life - how can we judge whether someone with Downs syndrome is worse off?

The challenge to the church is to model something radically different. Are we really recognising the worth of all people as made in the image of God? Do we pay more attention to the articulate, capable couple likely to lead our home groups and so on, than to those with physical or mental disabilities? What's more, do we recognise the contribution that many people with disabilities can bring and do we seek these out?

In all this, I'm not suggesting that raising a child with Down's would be easy - and as church communities we need to be offering love and practical support to the difficulties people may face as a result of disabilities within their families. But I don't believe for a second that when Paul wrote in 1 Corinthians 12 about the importance of the church working as a body, with each part needing the other, he meant to exclude those with disabilities. Consider what he says in verse 22, "In fact, some of the parts that seem weakest and least important are really the most necessary." Perhaps these words should cause us to reflect again on just whose life we value.

 

 

Susannah Clark, Public Theology Researcher


Latest comments :
(The views below are the authors', and not necessarily those of the Evangelical Alliance.)

Written by David Young on 05 November 2009 at 12.09
Phil, one of the reasons you have only heard one disabled person give a sermon in your church might be that, among the people who were qualified to give sermons, there happened to be only one who was disabled.

If, on the other hand, it was 'I'm disabled, which is why I am giving a sermon', it was one sermon too many.
Written by Bill Smith on 01 November 2009 at 19.57
I have a nephew who is Downs. He is in his 40's. He loves the Lord, knows verses of scripture, knows the words of many worship songs. Thoroughly enjoys church. He is very happy, loving and leaves others feeling better for having been with him. Who can put a value on that?
I have a daughter, born very severely mentally disabled. She is in her 40's. She is not able to do anything for herself. She needs 24/7 care where absolutely everything is done for her.Her "contribution" to society is taking from it the resources she needs to simply live.She has very little motor control. No speech. She is unable to walk unaided, and then only for a few feet.She screams uncontrolled until a reason is found and attempts made to alleviate the cause.
I stopped asking God why? when I felt He told me to stop asking why? and just get on and love her.Which is such a great joy and privilege.
I wrote this poem as an expression of what it is like to grapple with such situations.

Rebecca.

Who caused the pain
that almost broke my heart?

Who sent the hurt
that refuses to depart?

Who threw the dice
that determines how it goes?

Who has the answers?
Only God knows.

But, I know this
As I watch you,
sitting
helpless,
the spittle dribbling down your chin,
the involuntary twitching of your eyes and hands,
the undignified contorting of undisciplined limbs,
I know you and I are joined.
We are one in humanities great
kaleidoscope of experience.
We are one in life.
We are one in reaching out to need and be needed.
We are one in unanswerables.

You are special,
Unique.
No one else smiles with that
all-embracing
face splitting
eyes shining
abandonment.
So utterly indiscreet.
Uninhibited,
Innocent.

No one else asks questions as you do
as your virgin spirit
searches my soul through guileless eyes.

The spontaneous roars of laughter
that possess your whole being
erupting from some cavernous well
no one can fathom.

What is it that thrills me to go on?
It's the you-ness of you.

It's not fair!!
No,
it's not.
Why should it be?
Do I have the right for it to be fair?

Even the earth needs winter.
Constant sunshine brings barren, harsh, abrasive desert.
How enriching is the soul's response
when hard and cruel circumstance
Introduces the unwanted.

On a lonely hill
three trees
Rootless
bore the fruit of life's undoing.
So darkness veiled the pain of God's heart.
broken in an agony of love.
A love that will not let go.
A love that refuses
Refuses to allow the hell bent
yearnings of a damaged spirit
to suffer
unaided,
alone.

No mind can ever understand
the utter horror of that darkness.
Forsaken
God's Only Begotten .
Clothed in
unfathomable robes of all humanities horror.
Weighed down
crushed by the agony of horror embraced.
He gives up His own pure heart
to unimaginable loss.
Alone,turned from,despised,rejected.
No other heart can ever feel
what that one time entailed.

My unknowing hurt
which in its serving
hates the need,
finds comfort in this knowing
That God, Himself, has suffered more.

And you,
whose mind I fail to penetrate.
What thoughts do you have?
What depths lie virgin in your heart,
that angel voices herald to the skies,
and speak to me from searching
guileless eyes?

(Bill Smith)
I hope this helps as people grapple with this difficult area of life.
God bless you.
Written by Susie Hart on 01 November 2009 at 17.30
As a mother of a gorgeous five year old blondie with Downs syndrome, and as a CMS mission partner working with disabled people in Tanzania for the past 7 years trying to change negative attitudes and stigma towards them in local society, I really valued this article. I was deeply shocked and saddened to read that 90% of women who discover they are carrying a child with Downs decide to terminate the pregnancy. Rosie brings SO MUCH joy, laughter and love into our family and we would not be without her for the world. We didn't know she would have downs until after she was born, and yes it was a shock at first but once you get over the intial grief at not having the baby you were expecting to have, and instead learn to accept the one you as the gorgeous gift from God that she is, you will find that your life and those around you will be immensely richer for having her in your family. Truly we are all made in the image of God, in that we all have the capacity to create, to love, to forgive, to show mercy, etc, and these are all capacities that are abundantly found in people with disabilties to the same extent as everyone else, people with Downs Syndrome included.

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Subject: Children and young people | Abortion | Mental health | Family issues | Theology of abortion | Theology of mental health
    Author: Clark, Susannah | Thacker, Justin
    © Evangelical Alliance